Internal Fight in Autism Community...
It's No Wonder
Autism is Still With Us...
Opinion by Consumer Advocate
Monday, December 3rd, 2012
It's the elephant in the room, that some
say is so large, and so encompassing,
that no one in authority even wants to
hear about it much less deal with it.
On November 29th, 2012 at 2:00 PM in the
Rayburn Building in Washington DC the
Congressional Committee on Oversight and
Government Reform, chaired, now, by
lssa, Republican from California,
held another hearing on Autism - the
first in ten years.
And, it was a farce.
I watched the whole thing on C-Span
while it happened. I advise you to
do the same.
Dan Olmstead, over at Age of Autism,
wrote a good piece, although short, on
the hearing called
"Landmark Autism Hearing: "The Troops
Have Landed on Normandy Beach."
Jump over and read it right now.
Dan makes good points about some of the good
things about the hearing. But Dan lives in the
conflict. He runs things over at Age of Autism
- and does a very good job of it. Let's look
at the thing from over here on the periphery, where
we can see the whole picture. When we do that
something very ugly emerges.
Let's start with who it was that the
Congressional committee SELECTED to represent what
they see as Autism. There were six speakers
picked by the committee to "represent" Autism, half
of which claimed to represent the Asperger Syndrome
portion of the Autism Spectrum, indicating to any
member of the public, or of Congress, watching, that
Aspergers was, in fact, what Autism was all about.
Worse - The version of Aspergers depicted was
The Last non-government Speaker - The person who had the FINAL WORD from the Autism
speakers was sneering, greasy-faced, Rolex watch
flashing, Ari Ne'eman, supposedly the president of
the Autistic Self Advocacy Network who, to me, is a
total goofball, and needs to be exposed for it.
Investment Analyst John Best writes in his blog
"Debunking Neurodiversity and Ari Ne'eman" about
Ne'eman, clearly, and concisely.
"Neurodiversity is a concept that began as a
positive approach to equalizing treatment for people
with disabilities. It was intended to raise
consciousness, promote positive self-images and to
change public opinion about the way disabled people
are viewed. When it started, this included high
functioning people who allegedly had autism and
Asperger's. It was quickly perverted into a massive
propaganda campaign to abuse autistic children by
preventing them from being cured."
More Age of Autism itself, last year, said, of
We the undersigned oppose the nomination of Ari
Ne'eman to the National Council on Disability.
Although we salute your effort to include a person
with an autism spectrum disorder on the council, the
choice of Mr. Ne'eman is wrong for the autism
community and wrong for our country.
We are a nation in the throes of an autism
epidemic, with 1 in 110 afflicted and hundreds of
thousands of families struggling to confront the
enormous financial and emotional hardships of this
disorder. It is an insult to our community and to
the people of this nation who will bear the enormous
costs of millions of children and adults with autism
that a 22-year-old student has been nominated to
this position. Mr. President, how can you praise
this nominee's "depth of experience" when he has not
held a job, earned a degree or experienced life
It was bad enough that whoever in the Oversight
and Reform committee picked the representatives from
the Autism community, insisted on the Aspergers
portrayal as though Aspergers was the sum total of
Autism. Anyone not familiar with the reality
of Autism, watching the hearing, either there in the
room, or on C-Span, would HAVE to get the
impression, from watching Ne'eman, that Autistics
were unconvincing, sneering, greasy-faced, Rolex
watch flashing, weirdo, unsympathetic idiots.
There it was - right in front of us. And
that's just wrong. .
The Second-to-the-last non-government Speaker was, supposedly
representing Autistic interests, in his own way,
even worse. Michael John Carley (where do they
find these people?) allegedly the Executive Director
of the Global & Regional Asperger Syndrome
Partnership was purporting that he and his son were
Aspergers Syndrome and that he demanded special
treatment in virtually everything. Having this
puke there at all, allegedly representing Autism was
a travesty. The committee Chair cut him off in
mid-speech, I think, not so much to stop him from
saying what he was saying, but to stop him from
looking even more of a fool then he was. He
had no business being there at all.
The Third-to-the-last non-government Speaker actually was
talking about real problems of real Aspergers
Syndrome - Bradley McGarry, Coordinator of the
Asperger Initiative at Mercyhurst University.
It looked to me that McGarry wanted nothing to do
with Ne'eman and Carley.
I'll talk about the other three "Autism" speakers
shortly, but first there is something that you need
to know about what was happening in the background.
This wasn't the hearing that was supposed to
happen. Not at all. If you are
properly sensing my anger and outrage within the
words and paragraphs of this article, you are about
to find out why.
This was supposed to be a hearing examining the
work of Brian Hooker PhD, pulling in members of the
Center for Disease Control and Prevention (CDC) to
answer hard questions about how they covered
up the fact that Thimerosal (mercury) in vaccines
causes Autism, ADD/ADHD, Asthma, and other
neurological issues (one in six US children).
As we all know Hooker's work, examining certain
CDC employee's criminal activity, is definitive (see
table of articles to the right). This hearing
was supposed to be a STRONG follow-up to Hooker's
work, where this committee would DEMAND, and if
necessary, SUBPOENA all internal government memos regarding
And, Hooker has TWO levels of concerns: (1)
He wanted to see all of the communications concerning the so-called
studies that the CDC claims prove NO RELATIONSHIP
between mercury and Autism, and (2) All
information about Poul Thorsen and his involvement
in these studies.
Hooker's second area of concern, the
involvement, may bring even more important
information to light, showing the depth of
corruption at the CDC. Why?
Because, in the original
Poul Thorsen scandal, Aarhaus
University in Denmark was complaining that TWO
MILLION dollars was stolen from the money (eight
million dollars) that was supposed to fund the
original "Danish Study," the one that the CDC claims
proves that there is no relationship between mercury
in vaccines and Autism.
Poul Thorsen was criminally
indicted in Atlanta, Georgia federal court for
stealing ONE MILLION dollars.
So what happened to the other million?
That question was what Hooker wanted to bring, as
the second issue, to the Oversight and Government
Reform Committee. And why is THAT important?
Because in order for
Poul Thorsen to have re-routed
the million dollars to himself he had to submit
claim requests (bills) to Aarhaus University, and
those forms would have had to have signature
approvals from a whole chain of CDC employees before
they were paid. Got that?
In other words, this was the Oversight and
Government Reform Committee's opportunity to find,
not only the other million, but to look for evidence
of collusion with Thorsen by CDC employees - who may
well have shared the other million.
And, if there was collusion for money, why would
we not believe there was collusion to create a fake
study, falsely claiming that there was no
relationship between mercury in vaccines and Autism?
Was the two million, itself, a payoff to not only
Poul Thorsen, but others?
In short the Oversight and Government Reform
Committee could have, on November 29th, 2012, began
the process of turning around the Autism epidemic
and they didn't.
I am furious.
And, there's more...
Just below is an excerpt from an email I sent to
an Autism Leadership Council group. It shows
the timeline of the arrangements for Hooker to
"This hearing had been arranged,
starting in March of 2012... Somehow, at the last
minute, it got changed. Be assured I'm looking
to see how that happened.
One of the absolute cornerstones of the CDC
argument that "Vaccines/Thimerosal do not cause
Autism" are the so-called "Danish Studies" that,
they claim, prove that there is no relationship
between Autism and Vaccines.
Brian Hooker PhD, most of you know, has taken on
the CDC over these studies, hammering them with FOIA
requests, and even suing them to force them to give
him internal memos that talk about the details of
those studies. I have written five detailed
articles about Brian's efforts. You can find them
all by going to the first one and following the
thread offered in the column at the right of the
In March of 2012 Brian Hooker first met, and
discussed with Dr. Gary Kompothecras from Florida,
the situation with the CDC. Dr Gary is very
influential with the Republican Party and is friends
with two US Congressmen - Buchanan and Posey.. Dr
Gary began using his high level contacts to see what
could be done to help the situation. As one result
US Congressman Posey, from Florida, on April 24th,
2012 co-authored a letter to the CDC with Dan
Burton, demanding more data from the CDC.
Then on May 1st, 2012 Brian Hooker, Dr Gary
Kompothecras, and Dr Andrew Wakefield met with
Congressmen Posey, Buchanan, and Darrell Issa (the
head of the oversight and Government Reform
Committee) where Issa suggested that he arrange a
hearing on CDC's cover-up activities. Issa referred
hooker to Sery Kim in his office to make
On May 18th, 2012 Hooker met, in Washington DC,
with Congressman Issa, Buchanan, Posey and their
three staffers Kim, Fauls, and Leiberman. There,
Issa committed to hold hearings on the causation of
Autism and the US vaccine program.
All throughout May, and the early part of June,
of 2012 preparations were underway for the
hearing. However, on June 15th, 2012 Sery Kim took
another job. It wasn't until August 24th, 2012 that
someone new was assigned the job. That person was
Mark Marin. At that point the committee hearing was
scheduled for September 19th, 2012. Hooker, along
with Louis Conte and Rolf Hazelhurst from EBCALA met
On September 8th, 2012 Mark Marin emailed Hooker
and the others that the hearing would be postponed
until after the election, so, they said, that the
committee could request documents.
On October 26th Congressman Posey's office
received 500 documents requested and turned them
over to Hooker for review.
On November 5th, 2012 Hooker and Dawn
Loughborough met with committee staffers Mark Marin
and Tegan Millspaw. There Marin told them that the
hearing would be on November 29th, 2012 and that the
people to testify would soon be selected.
On November 9th, 2012, 0ne day later, SafeMinds
announced via an email that they would be testifying
at the hearing along with Autism Speaks, the
American Academy of Pediatrics, and the Autism
Society of America, allegedly representing the
interests of the parents of Autistic children.
On November 13th, 2102 Brian Hooker was told by
Mark Marin that he would be EXCLUDED from the
So, here we are...
So, tell me - how did seven months of work
arranging, in effect, a full-on investigation of the
CDC and their vaccine cover-up evolve into the kind
of worthless presentation ("we don't know what's
causing Autism, we know it's not vaccines, but give
us money and we'll look into it") that we got?
My inquiries about this, and the responses I got,
make the story even worse.
The other three
The First Speaker - I've been very active in the Autism world for
almost two years now, and during that time I've
asked a lot of important questions, the most important one being "Why hasn't this Autism issue
been solved?" And the answer I got, time
after time was the same "Because Autism Squeaks
(Autism Speaks) gets all the money and the
attention, and nothing they do is of any major benefit."
And, as we saw, Autism Squeaks' Bob Wright, was
the lead-off speaker.
I don't need to belabor the issue. J. B.
Handley said it very well today on Age of Autism -
"The Unbearable Wimpiness of Being Autism Speaks'
Bob Wright." Apparently Wright's
presentation at the hearing was in usual character.
What I do need to tell you is that I have Autism
Squeaks' IRS Form 990s (Tax Returns). In
short, since 2006 they have been taking in between
50 to 60 million per year in SECRET contributions.
More, their so-called public fund-raisers (Walks)
are a charade. It costs them 1.7 million dollars
per year to put them on, and they take in only 1.4
million - a $300,000 loss for that activity.
So, who are the secret funders behind Autism
Squeaks? And, what do they want?
Well, I suspect the answer to that is right on
Autism Squeaks' website, where they say take a
The Second Speaker - Mr. Scott Badesch,
Autism Society of America had probably the most
forgettable speech of the day. I've yet to
figure out what these people do, besides taking in
3.5 million dollars per year in SECRET
contributions. All I can tell is that they, also,
are certain that vaccines don't cause Autism.
The Third Speaker - Mark Blaxill of
SafeMinds made the best points of all of the
so-called Autism speakers.. But, frankly, not
strong enough, nor specific enough for me. I
was told to expect this - as SafeMinds, acts wimpy,
officially doesn't like confrontation. And,
SafeMinds Board Member Sally Bernard is also on
Autism Squeaks' Board, and I'm told, raised over
million dollars last year for Autism Squeaks - and
nothing for SafeMinds. What's that all about?
So, let's talk about the
The First Government Speaker - Alan Guttmacher, M.D.,
Director, Eunice Kennedy Shriver National Institute
of Child Health and Human Development at the
National Institutes of Health (NIH) took his
five minutes to rattle off pages of boring numbers,
I guess, trying to tell the committee how
wonderfully busy they were working on this Autism
problem. There was a lot of material but let
me mock paraphrase it. It went something like
Three years ago we
bought some things called pencils. No one in
our organization had ever seen one of these before,
so we hired a consultant, a trusted person named
Poul Thorsen to do a study in Denmark and get back
to us. Poulson personally delivered his four
million dollar report on his Harley-Davidson
motorcycle. Thorsen recommended we look into
something called a pencil sharpener. Thorsen
submitted a request for a ten million dollar grant
to study whether pencil sharpeners cause Autism, and
we have put together a committee to study his study
grant request. We should finish our study of
his study grant request by the end of 2014, or mid
Several of our
employees, after Thorsen's report, noted that the
pencils, once sharpened, acquire a sharp point and
have asked for an OSHA Opinion. Others noted
that the action of pencil sharpening creates a waste
product which may not have been evaluated by the
Environmental Protection Agency. They demanded
an Environmental Impact Report be completed before
agency employees were required to use these new
Yes, I was being facetious. But, did I make
my point? What he actually said
was just about as spurious. He was just using
up his required five minutes. If he had
another minute I think he would have told us how
often the agency vehicles went to the car wash.
The Second Government Speaker - Coleen Boyle, Ph.D.,
Director of the National Center on Birth Defects and
Centers for Disease Control and Prevention (CDC)
should have been warned "You have the right to
remain silent..." Why? She got the
crap beat out of her by Congressional questions.
It was the highlight of the day watching her squirm
Boyles, I can tell, is going to have a
rough ride. Why? Because
several Congressman raked her over the
coals, and none of them, I'm told, are
through with her. I'll be doing a
separate article on this alone.
But, let's get
to the points...
Dan Burton, bless his soul,
conducted over twenty hearings on the Autism subject
during his time in Congress. Each hearing was
revealing - very revealing. But nothing
came of them except a written report, which,
obviously, no one read, or, if they did, they did
NOTHING with the information.
Understand me, in this hearing
there were some very positive parts. But, even
if this hearing uncovered some points - SO WHAT?
Was this hearing designed to be a
soporific? Something to lull our side of
the argument to go to sleep thinking we had
The only really important thing,
I think, that came out of this hearing is ANGER.
The internet is blistering with commentary. My
telephone doesn't stop ringing. Good.
So, we are all asking, "What's
next?" More hearings? Criminal
So I hear.
Right now there is a lot of
planning going on. And, it is about time.
You can watch the whole hearing if you click
Tim Bolen - Consumer